资讯
Hemlibra safely reduces bleeding episodes in people with hemophilia A without inhibitors, per a review study that confirmed ...
The first hemophilia B patient in Germany received gene therapy Hemgenix, covered by public healthcare with efficacy-tied reimbursement.
Columnist Jennifer Lynne reflects on a women's retreat, where shared stories revealed gaps in medical care and the need for community.
Like many with hemophilia, columnist G Shellye Horowitz requires IV infusions of her medication — but the scars can raise ...
Certain immune markers in the blood may help predict ITI response among hemophilia A patients given immune tolerance ...
Columnists G Shellye Horowitz, caught up in an art project, forgot that she was living with hemophilia and needed treatment. Oops.
Columnist Joe MacDonald shares lessons in humility after his son proves better equipped to help his younger brother write about hemophilia.
Because the truth is that not everything is as it seems. The people who face these invisible battles of chronic illness are the courageous ones. They get through each day, hoping for few or no health ...
Columnist Alliah Czarielle questions the expectation that those living with hemophilia should always manage their condition "perfectly." ...
While packing for a move, the youngest son of columnist Cazandra Campos-MacDonald experiences a regular guest: joint pain.
Hemophilia is a blood disorder that is characterized by a shortage of specific clotting factors that help to form blood clots and stop bleeding. The primary treatment for hemophilia is replacement ...
Jennifer Lynne is an entrepreneur specializing in digital marketing, a self-professed computer nerd, and a nationally competitive Scrabble player. Jennifer has strong ties to the bleeding disorder ...
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